Implementation Advisory Group (IAG) for the National Strategy for Drugs for Rare Diseases

Pharmaceutical policy and innovation for rare

Navigating multiple diseases and late diagnosis: Sylvie's Story - Canadian Rare Disease Network

Isra Jeelani Wani on LinkedIn: It was fantastic to hear from this diverse expert panel last night, which…

Implementation Advisory Group (IAG) for the National Strategy for

Money allocated, but no progress for Canadians with rare diseases

Isra Jeelani Wani on LinkedIn: It was fantastic to hear from this diverse expert panel last night, which…

Sector Australian National Audit Office (ANAO)

Implementation Advisory Group (IAG) for the National Strategy for

Frontiers Contribution of patient registries to regulatory

Ricardo Werner Marek on LinkedIn: Development of novel therapies - Copenhagen Economics

The involvement of rare disease patient organisations in